All things Advocacy


Social Media Toolkit – New York Disability Advocates (


An 8.5% Cost-of-Living Adjustment

Due to significant inflation and supply chain disruptions have resulted in significant financial pressure on agencies, necessitating an 8.5% COLA to be included in the 2024 NYS Budget to ensure the long-term sustainability of non-profit disability service providers.

March Madness is not just for basketball brackets – it’s the annual race to get our budget priorities in the FINAL New York State budget – which is due April 1!  The NYS Senate and Assembly presented their one-House Budget recommendations, in response to the Governor’s Budget proposal (highlights of interest attached) and negotiations have begun on what will be in the final budget.

Therefore, you need to Advocate NOW for IDD Budget priorities to be in the final NYS Budget!

Two immediate ways to advocate:

  • Join the NYDA Rally for the 8.5% COLA in the Well of the Legislative Office Building (LOB), in Albany, on Thursday March 23 at 11am!  There will be postcards and material to share with your Legislators in their Albany LOB offices, which are an elevator ride away from the Rally.
  • Send letters (and urge all staff, families, volunteers to send) to the Governor and your legislators on each of our four priority issues (8.5% COLA, Equal funding for our 4410 and 853 schools, 11% Early Intervention increase, Telehealth parity for individuals with IDD & TBI)  by:
    • Using the attached sheet with a link and QR code to each campaign/issue
    • Go to or use the QR code below:

You can send each of these letters once every 24 hours – remember to send them every day!


Click HERE to send a letter to the Governor which will be printed out and delivered to her personally by BJ Stasio, Self-Advocate Extraordinaire, in a meeting with her to discuss our workforce crisis.

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ANCOR – As a nonprofit organization, ANCOR works to address the needs and interests of private community service providers before Congress and federal agencies and continually advocates for the crucial role private providers play in enhancing and supporting the lives of people with disabilities and their families.

NYC FAIR – Family, Advocacy, Information, & Resources for People with Intellectual & Developmental Disabilities. NYC FAIR | Family, Advocacy, Information & Resources for People with Intellectual & Developmental Disabilities (

NYDA – New York Disability Advocates (NYDA) is a statewide coalition of more than 300 non-profit organizations providing vital services and support to more than 140,000 New Yorkers with intellectual and developmental disabilities. NYDA News (

SWAN OF NYS –  The State-Wide Family Advocacy Network of New York State (SWAN of NYS) is dedicated to advocating for individuals with Intellectual and Developmental Disabilities. We are an independent coalition of families and guardians of people with Intellectual and Developmental Disabilities. Caring for our loved ones is our life-long commitment. SWAN of NYS – Statewide Advocacy for People with Intellectual and Developmental Disabilities (

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